Skip to main content

New to blogging ..... Bare with me for first few posts

Where to start .... As some of you may already know I was diagnosed with a rare type of cancer in July 2013.  A Chandro Sarcoma to be exact,  this type of cancer either starts developing on the bone or as tissue and attaches to bone.  Mine is in my pelvis and attached to parts of the pelvis.   I have had cronic back pain and sciatica all throughout my pregnancy, in May of 2013 I noticed my one buttcheek was a little bigger then the other.  My family doctor sent me for an MRI and Ultrasound at Grandriver Hospital.  The results came back showing I had a large mass in my pelvis.  My family doctor thought it could be a large hematoma from having Alyssa.  I was referred to a specialist  in Hamilton at the Jurvenski Cancer Centre ...... The name of the building scared the crap out of me.  On  July 16th, I met with my specialist Dr. Ghert.  She examined me and within 5 minutes she told me I definitely had some type of sarcoma ...... What kind she was unsure.  She needed me to have tests run at her hospital for MRI, CT Scan, X-ray, Bloodwork and Biopsy.  So for the next 8 days I was back and forth to Hamilton going through these tests.  I had a follow up appointment with my doctor on July 25th - I'd say this was the scariest thing I have ever experienced.  I had to wait in a creepy waiting room till my doctor came in.  Oh and this was the day before we were leaving for our family vacation.  In walked Dr. Ghert and she sat down and broke the news to my family and I.  I had a Chandro Sarcoma that had grown quite aggressive.  I was shocked and pretty speechless, thank god I had my parents and hubby there because I didn't take in to much information at the time.  She then went on to explain that chemo and radiation don't respond well to this type of cancer, she explained I would have to go through surgery.  She explained the surgery briefly but I'll go into detail with that later.

The game plan was for me to go through 6 weeks of intense radiation in hopes it would create a margin around the tumour to make it easier for my doctor when doing the surgery.

As you can imagine I had a thousand thoughts running through my head ..... WHY ME? DID I EAT
SOMETHING TO GIVE ME CANCER? THIS ISN'T SUPPOSED TO HAPPEN TO SOMEONE LIKE ME WHO IS YOUNG AND HEALTHY AND HAS A LITTLE FAMILY AT HOME.

So anyway we went away on our family vacation for the week in hopes it would be a good distraction.  We had to cut our trip short to come home for my appointment  with my radiation oncologist.

I will talk about the radiation in my next post.   More to come ,,,,,,

Comments

  1. Unknown1 December 2013 at 18:43

    Laura I am glad you decided to record your journey. I hope in the months and years to come you will look back and see just how far you travelled. I wish you didn't have to go through this frightening experience and you are right to ask why you? You know I am your biggest fan and will be cheering you on every step of the way. I pray for you daily. Hugs. Carol Ann

    ReplyDelete

Post a Comment

Popular posts from this blog

Feeling Pretty Good .......

TUESDAY SEPTEMBER 30TH 2014 @ 3:01PM: relaxing well munchie is sleeping HOW I FEEL:  Awesome.  Been rocking 1 CANE around the house for the last 2 days and I seem to have a little more energy this week. Well the most exciting news is that I have been rocking 1 cane around the house and feeling pretty damn good.  I struggle a little on the carpet upstairs because it's not a flat surface; like the tile and hardwood BUT none the less I am still doing it.  I haven't been brave enough to use one cane out running errands; MAYBE sooner then I think.  This weekend I am going to go shopping for a new cane.  Time to upgrade my granny silver cane to a pink one perhaps.  So exciting!  Soon I will have canes to match every outfit.  hahaha yeh right.  I also started acupuncture at physio yesterday; we are hoping that the acupuncture will help speed up the healing of my wound.  In 2 weeks we should k...
Post a Comment
Read more

YACC Retreat and Munchie's Birthday :):)

MONDAY NOVEMBER 24TH 2014 @ 3:00pm: relaxing and going to pick Alyssa up from daycare shortly HOW   I   FEEL : tired I've been sitting here for the last half an hour or so staring at this computer screen trying to decide where to start with this blog post.  I have so much I want to share just unsure where to start.  I guess I'll start here ---- 7 days ago I got the privilege of attending the Young Adults with Cancer Retreat in Cobourg.  Dan and I got to spend 5 days there with a group of 35 AMAZING people.  I was a little unsure of what to expect going to this but after speaking with people who had attended prior retreats and told me it changed their lives completely, I knew I had to go and see it for myself.  The first day I found really intense; we sat in a circle all 35 of us and gave a brief introduction of ourselves and our journey.  I remember that night when I went to bed I thought to myself ‘holy shit, th...
Post a Comment
Read more

And so my anxiety begins .....

MONDAY OCTOBER 27TH 2014 @ 8:25pm: in bed watching 2 Broke Girls and eating chocolate mmmm lol HOW I FEEL : tired .... stressed out .... exhausted Sooooo like the title of my blogspot states .... My anxiety for my 1 Year checkup has begun.  I know right? 1 year already since my surgery and since I was told I officially kicked Cancers Ass #screwyousarcoma #youwillneverwin.  My appointment is next Tuesday - bloodwork, X-ray and appointment with Dr. Ghert....the usual process.  For some reason my anxiety seems higher because I really want to say I've been 1 year Cancer free.  I just get so worked up and I ask myself if these appointments will EVER get easier,  I'm told not really .... The anxiety gets less and less but never fully goes away.  Awhile back I had joined this Facebook group for individuals that have or had chandrosarcomas .... In the beginning it seemed pretty awesome, reading other people's stories (from all over the world) and sharing mine...
Post a Comment
Read more