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New to blogging ..... Bare with me for first few posts

Where to start .... As some of you may already know I was diagnosed with a rare type of cancer in July 2013.  A Chandro Sarcoma to be exact,  this type of cancer either starts developing on the bone or as tissue and attaches to bone.  Mine is in my pelvis and attached to parts of the pelvis.   I have had cronic back pain and sciatica all throughout my pregnancy, in May of 2013 I noticed my one buttcheek was a little bigger then the other.  My family doctor sent me for an MRI and Ultrasound at Grandriver Hospital.  The results came back showing I had a large mass in my pelvis.  My family doctor thought it could be a large hematoma from having Alyssa.  I was referred to a specialist  in Hamilton at the Jurvenski Cancer Centre ...... The name of the building scared the crap out of me.  On  July 16th, I met with my specialist Dr. Ghert.  She examined me and within 5 minutes she told me I definitely had some type of sarcoma ...... What kind she was unsure.  She needed me to have tests run at her hospital for MRI, CT Scan, X-ray, Bloodwork and Biopsy.  So for the next 8 days I was back and forth to Hamilton going through these tests.  I had a follow up appointment with my doctor on July 25th - I'd say this was the scariest thing I have ever experienced.  I had to wait in a creepy waiting room till my doctor came in.  Oh and this was the day before we were leaving for our family vacation.  In walked Dr. Ghert and she sat down and broke the news to my family and I.  I had a Chandro Sarcoma that had grown quite aggressive.  I was shocked and pretty speechless, thank god I had my parents and hubby there because I didn't take in to much information at the time.  She then went on to explain that chemo and radiation don't respond well to this type of cancer, she explained I would have to go through surgery.  She explained the surgery briefly but I'll go into detail with that later.

The game plan was for me to go through 6 weeks of intense radiation in hopes it would create a margin around the tumour to make it easier for my doctor when doing the surgery.

As you can imagine I had a thousand thoughts running through my head ..... WHY ME? DID I EAT
SOMETHING TO GIVE ME CANCER? THIS ISN'T SUPPOSED TO HAPPEN TO SOMEONE LIKE ME WHO IS YOUNG AND HEALTHY AND HAS A LITTLE FAMILY AT HOME.

So anyway we went away on our family vacation for the week in hopes it would be a good distraction.  We had to cut our trip short to come home for my appointment  with my radiation oncologist.

I will talk about the radiation in my next post.   More to come ,,,,,,

Comments

  1. Unknown1 December 2013 at 18:43

    Laura I am glad you decided to record your journey. I hope in the months and years to come you will look back and see just how far you travelled. I wish you didn't have to go through this frightening experience and you are right to ask why you? You know I am your biggest fan and will be cheering you on every step of the way. I pray for you daily. Hugs. Carol Ann

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