Skip to main content

Update .... Sorry I've disappeared

I'm so bad at keeping my blog up to date, but things have been busy and hectic.  Last weekend was my first weekend that I was allowed to get up in wheelchair without physio.  I got up both Saturday and Sunday with Dan and Alyssa.  Alyssa loves when I'm in wheelchair because we can go out and explore.  Dan pushed Alyssa and I downstairs and we just walked around the corridor downstairs, we stopped to look at the big fish tank.  Alyssa loves sitting on my lap, it's like she's in her stroller only sitting on mamas lap lol!!!!!! When she gets antsy, she runs infront of us and we pretend we are chasing her.  She just giggles and smiles.  Her giggles and smiles make me smile.

As for my physio update: I am currently waiting to be transferred to UT2 - this floor offers rehab two times a day and 7 days a week.  Right now I'm half an hour a day and no physio on weekends.  My surgeon recommended physio twice a day bc it's what I need to get more mobile.  The physiotherapists on my current floor are pretty good with coming back and doing some leg exercises with me in bed.  I also do my leg exercises on my own or when a family member is here.  My left leg is just really stiff In the knee, all the muscles have tightened up.  My therapist said they loosen up, but it will take time.  So my physio consists of me standing up with the walker and then walking forward as far as I can and my mom follows with wheelchair behind, when I get tired I can sit in chair, then i stay in chair for 1-1.5 hrs.  Friday I walked 5 steps, Monday 8 steps, Tuesday 12 steps, Wednesday 15 steps and today a big whopping 30 steps!!!!!!!! Yeah go me.  I got to one point where physiotherapist told me I could sit down, but I kept going past her goal and made it to the 30 step ..... Once I made it, then I did some leg exercises just standing there with walker.  Phew and tonight my legs feel like jello, and like I just did a workout for 5 hours lol.  Physio seems to be getting a little easier day by day, and my walking is getting better - before I needed assistance pushing left leg whereas tonight I was doing all the work.  No one was supporting me to hold me up with walker.  I did amazing!!!!!!  Sooner or later I'll be up booting around with the old ladies on my floor lol!!!!!!  :)

To top it all off yesterday I came down with a fever of 39.9.........they weren't sure if it was just flu light symptoms or if it was an infection.  I had my bloodwork done and it turned out bloodwork came back clear and white blood cell count was perfect.  My fever finally broke last night around 5pm or so......I swear I have never sweat that much from a fever.  It was not a great experience.  I'm feeling much better today, just tired.

I will update more tomorrow night, when I'm not falling asleep well typing :)

Enjoy :)

Comments

Popular posts from this blog

My Days in ICU and in Private Room

My days in ICU were alright I guess.  I spent a lot of time sleeping.  For the first few days my blood levels were everywhere and I ended up needing more blood after the surgery.  A lot of my time in ICU was a blur.  Saturday which was day after my surgery was Alyssa's first birthday.  I can't believe she is 1 already.  I did get to see her on her birthday which was nice, but I was tired and she was in a new place and got fussy pretty quick.  The morning of her birthday my sister in law and brother were kind enough to watch her and had a mini party for her.  See some of the pics below: She had a blast for her birthday and was totally spoiled.  Back to ICU days .... My doctors had thought I'd still have the breathing tube in a few days after surgery.  Everything went so well I was moved out of ICU by Tuesday.  I was moved to my own private room, it wasn't on the floor my doctor originally wanted me to be but it would work until a room opened up.  T

December 5th ..... Received some news I didn't want to hear ....

Hmmmm where to start......today was a rough and emotional day for me.  Started off ok, had my breakfast and watched abit of TV.  Hubby came up around 10am, I always feel more at ease when he is here with me.  Around 10:30am my physio team came in......as much as they push me so hard I love the head physio lady Jodi.  She is amazing with me and makes me feel so comfortable.  Everytime they come in my anxiety gets bad, I need to somehow learn to overcome that.  They pull me into a sitting position on end of bed and then make me stand using the walker.  I don't know why I get anxious because every time I do it, it gets easier and easier.  Today it felt extremely difficult standing up, even tho my therapists told me that they weren't supporting me as much today as they normally do.  They said I did an awesome job, so I'll go with that. Last night was my first night sleeping on my new mattress, it's definitely much more comfortable then the other bed I had.  It's an ai

New to blogging ..... Bare with me for first few posts

Where to start .... As some of you may already know I was diagnosed with a rare type of cancer in July 2013.  A Chandro Sarcoma to be exact,  this type of cancer either starts developing on the bone or as tissue and attaches to bone.  Mine is in my pelvis and attached to parts of the pelvis.   I have had cronic back pain and sciatica all throughout my pregnancy, in May of 2013 I noticed my one buttcheek was a little bigger then the other.  My family doctor sent me for an MRI and Ultrasound at Grandriver Hospital.  The results came back showing I had a large mass in my pelvis.  My family doctor thought it could be a large hematoma from having Alyssa.  I was referred to a specialist  in Hamilton at the Jurvenski Cancer Centre ...... The name of the building scared the crap out of me.  On  July 16th, I met with my specialist Dr. Ghert.  She examined me and within 5 minutes she told me I definitely had some type of sarcoma ...... What kind she was unsure.  She needed me to have tests run